Lecturer (Child Health)
Malcolm, C., Gibson, F., Adams, S., Anderson, G. & Forbat, L. (2013). A relational understanding of sibling experiences of children with rare life-limiting conditions: findings from a qualitative study. Journal of Child Health Care. 18(3), 230-240. doi:10.1177/1367493513485825. ISSN 1367-4935
Mucopolysaccharidoses (MPS) and Batten disease are rare life-limiting conditions (LLCs) characterised by progressive and permanent physical and cognitive decline. The impact o...
Malcolm, C., Hain, R., Gibson, F., Adams, S., Anderson, G. & Forbat, L. (2012). Challenging symptoms in children with rare life-limiting conditions: findings from a prospective diary and interview study with families. Acta Paediatrica. 101(9), 985–992. doi:10.1111/j.1651-2227.2012.02680.x. ISSN 1651 2227
Aim: The aim was to describe the nature, frequency, severity and management challenges of symptoms in children with two rare life-limiting conditions [Mucopolysaccharide (MPS...