Diane Willis

Diane Willis

Dr Diane Willis

Lecturer

Biography

I am a lecturer at Edinburgh Napier University and hold professional qualifications – as a registered nurse, as a psychologist and I was a counsellor. I have held a number of posts from Research Fellow, Practice Educator, Equality Officer to lecturer in other Universities, the NHS and non Governmental Organisations. I have a wide portfolio of work both academic, Government and Health and Social Care areas.

My primary research interest lies in the field of intellectual disability especially cancer care, bereavement, healthy ageing, women’s issues and health and social care inequalities. I also have interests in mental health, welfare reform, citizenship, bereavement (more widely), health and social care workforce and creativity in the curriculum.

I am an external examiner for Sheffield Hallam University, Chair for Family Advice and Information Resource (FAIR) and Board member of the Society of Cancer and Intellectual and Developmental Disabilities.

I sit on a number of groups including the Learning Disability East Managed Care Network, Excellence in Care Academic Advisory Group and Future Nurse steering group .

Themes

Esteem

Advisory panels and expert committees or witness

  • Voting in people with intellectual disabilities.
  • Athena Swan Charter working group at the University of Glasgow
  • University on the Council of Deans interest group for learning disability
  • Changingmindz
  • CARE AFTER DEATH EDITION 2

 

Conference Activity

  • Palliative care
  • Intellectual disability services from the Swedish and Scottish perspective
  • Building momentum
  • Support and link person for students, Non-learning Disability Student Conference, with NES
  • Facilitator, conference on People with cancer and an intellectual disability: an international issue with local significance, Edinburgh, February 2008.
  • Member of the organising committee at University of Glasgow for RCN International Research Conference
  • Organiser: bereavement seminar Managed Clinical Networks
  • Organiser and chair, two-day workshop on Research in Learning Disability, University of Glasgow and Glasgow Caledonian University, .
  • Organiser of Symposium on strengthening commitment to ensure people with intellectual disabilities enjoy a good life. Presented with colleagues from Glasgow Caledonian University and NHS Greater Glasgow and Clyde (McGlade, I. and Gallagher, M.), Prince an
  • Organiser and chair,:”To absent friends”, Bereavement Café
  • Chair of session, ONCODEF conference France February 2014.

 

Conference/Workshop

  • Presenter and member of organising committee for the 2008 Postgraduate Conference, Edinburgh Napier University. Poster: Breast screening decision making in women with learning disabilities,
  • Presenter and organiser: Development workshop. Cancer and people with learning disabilities
  • Postgraduate Conference, Edinburgh Napier University. Oral presentation: An ethnographic study of decision making in relation to breast cancer screening for women with learning disabilities,
  • Presenter: Postgraduate Conference. Oral presentation: Breast screening and women with learning disabilities
  • Member of organising committee for the 2008 Postgraduate Conference

 

External Examining/Validations

  • External Examiner for University of Lincoln BN Adult

 

Fellowships and Awards

  • Shortlisted for the best paper in the RCN conference 2014 on bereavement and student nurses
  • NMAHP Award – Willis, D.S., & Mack, S. £300 (3rd prize), for a proposal for a Cancer Screening Handbook: A Guide for Professionals, Carers & Service Users

 

Invited Speaker

  • Managing the menopause in women with intellectual disabilities.
  • Special Interest Group Learning Disability. Oral presentation: The menopause and women with Intellectual Disability, Glasgow
  • Presenter and reviewer: IASSID (International Association for the Scientific Study of Intellectual Disabilities) European conference Vienna: Explaining health problems to people with learning disabilities: views from family and paid-carers and Introducin
  • Presenter: 14th IASSID (International Association for the Scientific Study of Intellectual Disabilities) World Congress on Intellectual Disability, Halifax, Canada, women with intellectual disabilities views on breast cancer screening and what facilitates
  • Presenter: 6th Learning and Teaching Conference: University of Glasgow, Teaching equality, diversity and health inequalities... with help from imaginary friends!
  • Presenter: Nurse Education Today Conference, Cambridge. Embedding understanding of mental health and learning disability into the pre-registration nursing curriculum. Willis, D.S., Rice, A-M, & Moriarty, D.
  • Presenter: Nurse Education Today Conference, Cambridge. Health inequalities - engaging the learner imagination. Willis, D.S., Stevenson, T. & Cantrell, J.
  • Presenter: NHS Lothian Research Day, Edinburgh Royal Infirmary. Poster: Exploring breast screening with women with intellectual disabilities, Edinburgh
  • Presenter: 13th IASSID World Congress on Intellectual Disability. Oral presentation. Exploring the menopause with women with intellectual disabilities and their carers, Cape Town, 2008.
  • Presenter: 13th IASSID World Congress on Intellectual Disability. Oral presentation. Talking to women with intellectual disabilities about participating in breast cancer screening, Cape Town.
  • Presenter: . Menopausal issues in women with intellectual disabilities.
  • Presenter: RCN Breast Care Nursing Society Annual Conference. Poster: Exploring breast screening participation with women with intellectual disabilities, London
  • Presenter: Women’s and Children’s group, NHS Fife: The menopause, women with learning disabilities and their carers. May 2011.
  • Scottish Consortium of Learning Disability Nursing Network Conference, Oral presentation: The menopause and women intellectual disabilities..
  • Invited speaker: Glasgow Palliative Care conference for people with learning disability: Glasgow, Scotland Bereavement issues in pre-registered staff implications for people with learning disabilities.
  • Invited speaker: Willis, D.S. Palliative Care conference, Cumbernauld. Supporting people with intellectual disabilities through investigations and treatment.
  • Invited Speaker: Welsh Marie Curie learning disability conference: title cancer and learning disability
  • Building momentum Conference
  • Invited Speaker: RCN Career Conference: Glasgow SSEC: Choosing a speciality (Willis, D.S., O’Neal, A. and Selfridge, E.).
  • Seattle Club. Oral presentation: Oral presentation: Relating the experience of the menopause – women with learning disabilities and their carers, Cardiff,

 

Non-executive Directorship

  • Chair of Family Advice and Information Resource

 

Public/Community Engagement

  • Life death and lilies
  • Sharing ideas in bereavement and end of life care workshop. Feeding back about bereavement in professionals who support people with learning disabilities.
  • ‘To absent Friends’
  • Bereavement workshop
  • Mental Health and Stigma: understanding what practitioners need to engage with people with mental health problems

 

Reviewing

  • Reviewer for grants
  • Reviewer IASSID congress
  • Reviewer for Royal College of Nursing International Research Conference
  • Reviewer for British Journal of Learning Disabilities
  • Reviewer for Journal of Psychiatric and Mental Health Nursing

 

Seminar/talk

  • Research seminar series, Oral presentation: The menopause and women with learning disabilities. Edinburgh,
  • Research seminar series, Napier University. Oral presentation: Video analysis and intellectual disabilities
  • Organiser and chair, Moving Forward in Cancer Care
  • Organiser, Post-graduate Seminar group

 

Visiting Positions

  • Oman

 

Date


43 results

Young men with intellectual disabilities, the HPV vaccine, and constructions of sexual health risk

Presentation / Conference
Carnegie, E., Gray Brunton, C., Whittaker, A., Kennedy, C., Hogg, R., Harding, S., …Willis, D. (2016, August)
Young men with intellectual disabilities, the HPV vaccine, and constructions of sexual health risk. Paper presented at The 30th joint European Health Psychology Society Conference/British Psychology Society Division of Health Psychology
Background: The Human Papilloma Virus (HPV) Vaccine was introduced internationally in order to provide a vaccine against common strands of the HPV virus which is implicated in...

Voting and the Scottish referendum: perspectives of people with intellectual disabilities and their family and paid carers

Journal Article
Willis, D. S., McGlade, I., Gallagher, M., & Menabney, C. (2016)
Voting and the Scottish referendum: perspectives of people with intellectual disabilities and their family and paid carers. Disability and Society, 31(7), 914-928. https://doi.org/10.1080/09687599.2016.1211002
Voting is a human right for every citizen yet many people with intellectual disabilities do not vote or have little support to exercise their right to vote. This article explo...

The human papillomavirus and HPV vaccine: accounts from young people from Black, Asian and Minority Ethnic groups in Scotland aged 16-26 years

Presentation / Conference
Carnegie, E., Whittaker, A., Gray-Brunton, C., Kennedy, C., Hogg, R., Pow, J., …Hanif, N. (2016, April)
The human papillomavirus and HPV vaccine: accounts from young people from Black, Asian and Minority Ethnic groups in Scotland aged 16-26 years. Paper presented at RCN International Nursing Research Conference 2016
Background: School nurses play important roles in delivering human papillomavirus (HPV) vaccination programme in United Kingdom. International research indicates lower HPV vac...

Failure of care in mental health trust: Déjà vu in terms of treatment of people with learning disabilities?

Journal Article
Willis, D. (2016)
Failure of care in mental health trust: Déjà vu in terms of treatment of people with learning disabilities?. BMJ, 352, ISSN 0959-8138
No abstract available.

What influences women with intellectual disabilities to attend breast screening? Experiences of women who have and have not participated

Journal Article
Willis, D. S., & Willis, D. (2016)
What influences women with intellectual disabilities to attend breast screening? Experiences of women who have and have not participated. British Journal of Learning Disabilities, 44(4), (269-276). ISSN 1354-4187
Background: Despite breast screening in Britain being free to all women within the allotted age range, uptake of this service is often poor in women with intellectual disabili...

Working with the disabled patient: Exploring student nurses views for curriculum development using a swot analysis.

Journal Article
Willis, D., & Thurston, M. (2015)
Working with the disabled patient: Exploring student nurses views for curriculum development using a swot analysis. Nurse Education Today, 35, 383-387. https://doi.org/10.1016/j.nedt.2014.10.013
Summary Background Increased longevity will mean an increase in people presenting with cognitive and physical disabilities, such as sight loss or dementia. The Patient Right...

Déjà vu in terms of treatment of people with learning disabilities?

Journal Article
Iacobucci, G., & Willis, D. (2015)
Déjà vu in terms of treatment of people with learning disabilities?. BMJ, 351, h6772. https://doi.org/10.1136/bmj.h6772

Reflective writing: The student nurse's perspective on reflective writing and poetry writing

Journal Article
Coleman, D., & Willis, D. S. (2015)
Reflective writing: The student nurse's perspective on reflective writing and poetry writing. Nurse Education Today, 35(7), (906-911). doi:10.1016/j.nedt.2015.02.018. ISSN 0260-6917
Summary Background Reflective writing is a mandatory part of nurse education but how students develop their skills and use reflection as part of their experiential learning ...

Paid- and family-carers' views on supporting women with intellectual disability through breast screening: Carers views on breast screening

Journal Article
Willis, D., Kilbride, L., Horsburgh, D., & Kennedy, C. (2015)
Paid- and family-carers' views on supporting women with intellectual disability through breast screening: Carers views on breast screening. European Journal of Cancer Care, 24(4), 473-482. https://doi.org/10.1111/ecc.12245
The cancer needs of people with intellectual disabilities are increasingly being debated. This paper explores the views and experiences of paid- and family-carers when support...

Inconsistencies in the roles of family- and paid- carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care

Journal Article
Willis, D. (2014)
Inconsistencies in the roles of family- and paid- carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care. British Journal of Learning Disabilities, 43, 24-31. https://doi.org/10.1111/bld.12082
Accessible summary •This paper looks at the views of paid- and family-carers about discussing health matters with people with learning disabilities. •The author found that th...

Pre-Napier Funded Projects

  • HPV vaccination in young people from ethnic minority backgrounds and people with intellectual disabilities.
  • Two day workshop on learning disability
  • Preparing for the future, fearing the worst, support for carers and people with learning disabilities in bereavement
  • Supporting pre-registered nurses in bereavement care.
  • Cancer screening in learning disability
  • Development workshop on cancer and people with learning disabilities.
  • Peer collaboration in children with and without intellectual disabilities.
  • Exploring the menopause in women Down's syndrome and non specific learning disability
  • Menopause in women with learning disability

Current Post Grad projects

Previous Post Grad projects

Non-Napier PhD or MSc by Research supervisions

  • A mixed methods study exploring the barriers and facilitators of screening for autism spectrum disorder in Oman