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Inconsistencies in the roles of family- and paid- carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care

Journal Article
Willis, D. (2014)
Inconsistencies in the roles of family- and paid- carers in monitoring health issues in people with learning disabilities: some implications for the integration of health and social care. British Journal of Learning Disabilities, 43, 24-31. https://doi.org/10.1111/bld.12082
Accessible summary •This paper looks at the views of paid- and family-carers about discussing health matters with people with learning disabilities. •The author found that th...

A longitudinal qualitative exploration of healthcare and informal support needs among survivors of critical illness: the RELINQUISH protocol

Journal Article
Ramsay, P., Huby, G., Rattray, J., Salisbury, L. G., Walsh, T. S., & Kean, S. (2012)
A longitudinal qualitative exploration of healthcare and informal support needs among survivors of critical illness: the RELINQUISH protocol. BMJ Open, 2, https://doi.org/10.1136/bmjopen-2012-001507
Introduction and background: Survival following critical illness is associated with a significant burden of physical, emotional and psychosocial morbidity. Recovery can be pro...

A grounded theory longitudinal study of carers' experiences of caring for people with dementia

Journal Article
Lin, M., Macmillan, M., & Brown, N. (2012)
A grounded theory longitudinal study of carers' experiences of caring for people with dementia. Dementia, 11, 181-197. https://doi.org/10.1177/1471301211421362
Introduction Increasingly the provision of care for older people with dementia has shifted from institutions to the community. This has resulted in an increase in burden and a...

Carer knowledge and experiences with menopause in women with Intellectual Disabilities

Journal Article
Willis, D., Wishart, J. G., & Muir, W. J. (2010)
Carer knowledge and experiences with menopause in women with Intellectual Disabilities. Journal of Policy and Practice in Intellectual Disabilities, 7, 42-48. https://doi.org/10.1111/j.1741-1130.2010.00246.x
Overall life expectancy for women with intellectual disabilities (ID) is now significantly extended, and many will live long enough to experience menopause. Little is known ab...

Breast cancer surveillance in women with intellectual disabilities

Journal Article
Willis, D., Kennedy, C., Kilbride, L., Satge, D., & Sullivan, S. G. (2008)
Breast cancer surveillance in women with intellectual disabilities. International journal on disability and human development, 7, 405-412. https://doi.org/10.1515/IJDHD.2008.7.4.405
Breast cancer is the most frequent malignant neoplasm observed among women. For the subgroup of women with learning/intellectual disability, it is unclear whether their risk f...

Caring for adults with a learning disability in the community

Journal Article
Powrie, E. (2001)
Caring for adults with a learning disability in the community. British Journal of Nursing. 10(14), 928-934. doi:10.12968/bjon.2001.10.14.5281. ISSN 0966-0461
A recurring theme within the literature is gaps in the delivery of services for people with a learning disability living in the community. These gaps occur between health prof...