Carnegie, E. (2018). Report of Public Engagement Event, October 11 2016. Edinburgh Napier University
This research study was conducted in 2015. The aim was to understand the views and experiences of the HPV vaccine in order to inform policy and practice. The researchers condu...
Stavert, J. (2016). Supported Decision-Making: Good Practice Guide. Edinburgh: Mental Welfare Commission for Scotland
Supported decision-making maximizes an individual's ability to ensure that their rights, will and preferences are at the centre of all decisions that concern them...
Truesdale-Kennedy, M., Taggart, L., Carey, M., Stacey, L., Madelia, P., Scott, J., …Northway, R. (2014). Type 2 Diabetes education for adults with intellectual disabillities. Journal of Applied Research in Intellectual Disabilities, 27(4), (297-328). doi:10.1111/jar.12107. ISSN 1360-2322
Aim: Our goal was to adapt a self-management type 2 diabetes educationprogramme developed for the non-disabled population (DESMOND) for usewith adults with intellectual disabi...
Burdett Trust for Nursing
The project focuses on person centred care for people with learning disabilities at the point of transition from child to adult health services. The project will include multiple nursing perspectives ...
Lecturer in Learning Disabilities
Learning Materials Developer & Interactive Lecturer
Maine, A., Brown, M. .., Dickson, A., & Truesdale, M. (in press). An evaluation of mainstream type 2 diabetes educational programs in relation to the needs of people with intellectual disabilities: A systematic review of the literature. Journal of Applied Research in Intellectual Disabilities, doi:10.1111/jar.12544
Risk reduction and self‐management programs for type 2 diabetes (T2D) are commonplace. However, little is known about their appropriateness for people with intellec...
Spassiani, N., Heffron, J., Hammel, J., & Angell, A. (in press). Using Photovoice as a Participatory Method to Identify and Strategize Community Participation with People with Intellectual and Developmental Disabilities. Scandinavian Journal of Occupational Therapy, 1-14. doi:10.1080/11038128.2018.1502350
Background: Adults with intellectual and developmental disabilities (I/DD) experience barriers to community participation, yet their insider experiences of environmental barri...
Al Maskari, T. S., Melville, C. A., & Willis, D. S. (2018). Systematic review: cultural adaptation and feasibility of screening for autism in non-English speaking countries. International Journal of Mental Health Systems, 12(1),
Aim: To explore the feasibility of screening for Autism spectrum disorder in Non-English-Speaking Countries, the cultural influences and the nurses' role in the screening proc...
O'Leary, L., Hughes-McCormack, L., Dunn, K., & Cooper, S. (in press). Early death and causes of death of people with Down syndrome: A systematic review. Journal of Applied Research in Intellectual Disabilities, doi:10.1111/jar.12446. ISSN 1360-2322
Background: It is thought that people with Down syndrome die younger than the general population, but that survival rates are improving.
Methods: Five databases were searched...
O'Leary, L., Cooper, S., & Hughes-McCormack, L. (2017). Early death and causes of death of people with intellectual disabilities: A systematic review. Journal of Applied Research in Intellectual Disabilities, doi:10.1111/jar.12417. ISSN 1360-2322
Background: Death of people with intellectual disabilities is considered to be earlier than for the general population.
Methods: Databases were searched for intellectual d...
Meisner, B. A., Linton, V., Séguin, A., & Spassiani, N. A. (2017). Examining Chronic Disease, Pain-Related Impairment, and Physical Activity Among Middle-Aged and Older Adults in Canada: Implications for Current and Future Aging Populations. Topics in Geriatric Rehabilitation, 33(3), (182-192). doi:10.1097/tgr.0000000000000154. ISSN 0882-7524
Purpose: With high levels of chronic disease (CD) and pain-related functional impairment (PFI), and low levels of physical activity (PA) among middle-aged and older adults, it...
Spassiani, N. A. (in press). It's Okay to Teach People with an Intellectual Disability about Their Disability. The Journal of Postsecondary Education and Disability
This paper introduces a newly accredited university programme for students with an intellectual disability (ID). The curriculum is largely based on disability studies pedagogy...
Friedman, C., & Spassiani, N. A. (2017). Getting Out There: Community Support Services for People With Intellectual and Developmental Disabilities in Medicaid HCBS Waivers. Inclusion, 5(1), (33-44). doi:10.1352/2326-6988-5.1.33. ISSN 2326-6988
Despite an increased number of community-based services, people with intellectual and developmental disabilities (IDD) continue to struggle with meaningful community participa...
E. E. Sutherland, & L. B. MacFarlane (Eds.), (2016). Implementing Article 3 of the United Nations Convention on the Rights of the Child: best interests, welfare and well-being
The UN Convention on the Rights of the Child is acknowledged as a landmark in the development of children's rights. Article 3 makes the child's best interests a primary consid...
Martin, C., Fleming, M., & McCorkindale, S. (2015). Measurement properties of the Illness Perception Questionnaire in practitioners working with patients with co-morbid schizophrenia and learning disability. European journal for person centered healthcare, 4(1), 215-220. doi:10.5750/ejpch.v4i1.1073
Rationale, aims and objectives: The widely-used Illness Perception Questionnaire (IPQ) adapted for use in patients with major mental health problems and those who care and wor...
Spassiani, N. A., Sawyer, A. R., Chacra, M. S. A., Koch, K., Muñoz, Y. A. & Lunsky, Y. (2016). “Teaches People That I'm More Than a Disability”: Using Nominal Group Technique in Patient-Oriented Research for People With Intellectual and Developmental Disabilities. Intellectual and Developmental Disabilities. 54(2), 112-122. doi:10.1352/1934-9556-54.2.112. ISSN 1934-9556
Individuals with intellectual and developmental disabilities (IDD) have complex healthcare needs, which are often unmet. Nominal group technique (NGT) uses a mixed-methods app...
Durbin, J., Selick, A., Casson, I., Green, L., Spassiani, N., Perry, A. & Lunsky, Y. (2016). Evaluating the Implementation of Health Checks for Adults With Intellectual and Developmental Disabilities in Primary Care: The Importance of Organizational Context. Intellectual and Developmental Disabilities. 54(2), 136-150. doi:10.1352/1934-9556-54.2.136. ISSN 1934-9556
Compared to other adults, those with intellectual and developmental disabilities have more health issues, yet are less likely to receive preventative care. One strategy that h...