Research Output

The impact of assuming the primary caregiver role following traumatic spinal cord injury: an interpretative phenomenological analysis of the spouse's experience.

  This study aimed to explore the lived experience of assuming the primary caregiver role in a group of spouses of individuals living with a traumatic spinal cord injury (SCI) (injuries ranged from paraplegia to quadriplegia). Individual in-depth interviews were conducted with 11 participants who were both the spouse and primary caregiver of an individual with a SCI; of these, 10 were female and 1 was male. All interviews were transcribed verbatim and were subjected to interpretative phenomenological analysis (IPA). Here we present three inter-related master themes: 'The emotional impact of SCI'; 'Post-injury shift in relationship dynamics' and 'Impact of caregiving on identity'. Regarding the emotional impact of spinal injury, participants reported an almost instantaneous sense of loss, emptiness and grief during the injured person's rehabilitative period and feelings of anxiety were reported in anticipation of their return to the family home. A distinct change in role from spouse and lover to care provider was reported and this ultimately contributed to relationship change and a loss of former identity. The findings are discussed in relation to extant caregiver literature and recommendations for future caregiver support are highlighted

  • Type:

    Article

  • Date:

    31 October 2010

  • Publication Status:

    Published

  • Publisher

    Taylor and Francis

  • DOI:

    10.1080/08870440903038949.

  • ISSN:

    0887-0446

  • Library of Congress:

    HV Social pathology. Social and public welfare

  • Dewey Decimal Classification:

    362 Social welfare problems & services

Citation

Dickson, A., O'Brien, G., Ward, R., Allan, D. & O'Carroll, R. E. (2010). The impact of assuming the primary caregiver role following traumatic spinal cord injury: an interpretative phenomenological analysis of the spouse's experience. Psychology and Health. 25, 1101-1120. doi:10.1080/08870440903038949. ISSN 0887-0446

Keywords

Caregivers; Psychosocial Factors; Caregiver Burden; Spinal Cord Injuries; Family Role Spouses -- Psychosocial Factors.

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