Research Output

Self-management of health by people with intellectual and developmental disabilities

  Background
Self‐management of health includes people with intellectual and developmental disabilities (IDD) playing a key role in health management in collaborating with healthcare professionals.
Methods
This study analysed data from Personal Outcome Measures® surveys (n = 1,341) to explore self‐management of health. We had the following research questions: Who is most likely to be supported to self‐manage their health? How does being supported to self‐manage impact different areas of health? and How does being supported to self‐manage impact other health‐related organizational supports?
Results
Findings revealed the impact of self‐management of health can be wide‐ranging, regardless of impairment severity. When supported to self‐manage their health, healthcare professionals were more likely to address healthcare issues, and interventions were more likely to be effective.
Conclusions
Self‐management represents a paradigm shift for people with IDD because it transforms people from passive recipients to active directors of their health.

  • Type:

    Article

  • Date:

    21 December 2018

  • Publication Status:

    Published

  • DOI:

    10.1111/jar.12554

  • ISSN:

    1360-2322

  • Library of Congress:

    RT Nursing

  • Dewey Decimal Classification:

    613 Personal health & safety

  • Funders:

    Edinburgh Napier Funded

Citation

Friedman, C., Rizzolo, M. C., & Spassiani, N. A. (2019). Self-management of health by people with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 32(3), 600-609. https://doi.org/10.1111/jar.12554

Authors

Keywords

organizational supports, participant direction, people with intellectual and developmental disabilities, self‐management of health,

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