Research Output
Transitions from child to adult health care for young people with intellectual disabilities: A systematic review
  Aims
To examine the experiences of health transitions for young people with intellectual disabilities and their carers and identify the implications for nursing practice.

Design
A systematic review and critical appraisal of qualitative, quantitative, and mixed methods studies.

Data sources
A search of the relevant literature published 2007–2017 was carried out in AMED, ASSIA, CINAHL, MEDLINE, PsycINFO, PubMed, and Science Direct Sociological Abstracts databases.

Review methods
A total of 12 of 637 papers identified in the search met the inclusion criteria for this review. A narrative review of the papers was undertaken by synthesizing the key findings and grouping them into concepts and emergent themes.

Results
Four main themes were identified: (a) becoming an adult; (b) fragmented transition process and care; (c) parents as advocates in emotional turmoil; and (d) making transitions happen.

Conclusion
The range of issues that have an impact on the transition from child to adult health services for young people with intellectual disabilities and their carers raise important implications for policy development, nursing practice, and education.

  • Type:

    Review

  • Date:

    28 February 2019

  • Publication Status:

    Published

  • DOI:

    10.1111/jan.13985

  • ISSN:

    0309-2402

  • Library of Congress:

    RJ101 Child Health. Child health services

  • Dewey Decimal Classification:

    610 Medicine & health

  • Funders:

    Burdett Trust for Nursing

Citation

Brown, M., Macarthur, J., Higgins, A., & Chouliara, Z. (2019). Transitions from child to adult health care for young people with intellectual disabilities: A systematic review. Journal of Advanced Nursing, 75(11), 2418-2434. https://doi.org/10.1111/jan.13985

Authors

Keywords

complex needs; health services; intellectual disabilities; nursing; systematic review; transitions; young people

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