Research Output

What is and isn’t working: Factors involved in sustaining community-based health and participation initiatives for people aging with intellectual and developmental disabilities

  As people with intellectual and developmental disabilities (I/DD) age it is important that I/DD agencies are prepared to support healthy aging in homes and in communities. This study explored supports and barriers to sustaining community-based health and participation initiatives (CBHPI) for people aging with I/DD living in group homes managed by agencies. The study utilized interviews and photovoice with 70 participants—35 individuals with I/DD and 35 management/direct support agency staff. Data were analyzed through content analysis and triangulation of data where five themes emerged: Agency values and policies related to healthy aging; resources and staff competencies; communication between management and staff; community/university partnerships; peer relations. Findings show that I/DD agencies and people with I/DD value CBHPI, but they find them difficult to sustain due to limited resources and lack of training specific to aging with I/DD.

  • Type:

    Article

  • Date:

    01 July 2019

  • Publication Status:

    Published

  • DOI:

    10.1111/jar.12640

  • ISSN:

    1360-2322

  • Library of Congress:

    HV Social pathology. Social and public welfare

  • Dewey Decimal Classification:

    362 Social welfare problems & services

  • Funders:

    Edinburgh Napier Funded

Citation

Spassiani, N., Meisner, B., Abou Chacra, M. S., Heller, T., & Hammel, J. (2019). What is and isn’t working: Factors involved in sustaining community-based health and participation initiatives for people aging with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 32(6), 1465-1477. https://doi.org/10.1111/jar.12640

Authors

Keywords

Intellectual/developmental disabilities, health promotion, knowledge translation, systems, sustainability,

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