Diane Willis

Diane Willis

Dr Diane Willis

Lecturer

Biography

I am a lecturer at Edinburgh Napier University and hold professional qualifications – as a registered nurse, as a psychologist and I was a counsellor. I have held a number of posts from Research Fellow, Practice Educator, Equality Officer to lecturer in other Universities, the NHS and non Governmental Organisations. I have a wide portfolio of work both academic, Government and Health and Social Care areas.

My primary research interest lies in the field of intellectual disability especially cancer care, bereavement, healthy ageing, women’s issues and health and social care inequalities. I also have interests in mental health, welfare reform, citizenship, bereavement (more widely), health and social care workforce and creativity in the curriculum.

I am an external examiner for Sheffield Hallam University, Chair for Family Advice and Information Resource (FAIR) and Board member of the Society of Cancer and Intellectual and Developmental Disabilities.

I sit on a number of groups including the Learning Disability East Managed Care Network, Excellence in Care Academic Advisory Group and Future Nurse steering group .

Themes

Esteem

Advisory panels and expert committees or witness

  • Voting in people with intellectual disabilities.
  • Athena Swan Charter working group at the University of Glasgow
  • University on the Council of Deans interest group for learning disability
  • Changingmindz
  • CARE AFTER DEATH EDITION 2

 

Conference Activity

  • Palliative care
  • Intellectual disability services from the Swedish and Scottish perspective
  • Building momentum
  • Support and link person for students, Non-learning Disability Student Conference, with NES
  • Facilitator, conference on People with cancer and an intellectual disability: an international issue with local significance, Edinburgh, February 2008.
  • Member of the organising committee at University of Glasgow for RCN International Research Conference
  • Organiser: bereavement seminar Managed Clinical Networks
  • Organiser and chair, two-day workshop on Research in Learning Disability, University of Glasgow and Glasgow Caledonian University, .
  • Organiser of Symposium on strengthening commitment to ensure people with intellectual disabilities enjoy a good life. Presented with colleagues from Glasgow Caledonian University and NHS Greater Glasgow and Clyde (McGlade, I. and Gallagher, M.), Prince an
  • Organiser and chair,:”To absent friends”, Bereavement Café
  • Chair of session, ONCODEF conference France February 2014.

 

Conference/Workshop

  • Member of organising committee for the 2008 Postgraduate Conference
  • Presenter and member of organising committee for the 2008 Postgraduate Conference, Edinburgh Napier University. Poster: Breast screening decision making in women with learning disabilities,
  • Presenter and organiser: Development workshop. Cancer and people with learning disabilities
  • Postgraduate Conference, Edinburgh Napier University. Oral presentation: An ethnographic study of decision making in relation to breast cancer screening for women with learning disabilities,
  • Presenter: Postgraduate Conference. Oral presentation: Breast screening and women with learning disabilities

 

External Examining/Validations

  • External Examiner for University of Lincoln BN Adult

 

Fellowships and Awards

  • NMAHP Award – Willis, D.S., & Mack, S. £300 (3rd prize), for a proposal for a Cancer Screening Handbook: A Guide for Professionals, Carers & Service Users
  • Shortlisted for the best paper in the RCN conference 2014 on bereavement and student nurses

 

Invited Speaker

  • Managing the menopause in women with intellectual disabilities.
  • Special Interest Group Learning Disability. Oral presentation: The menopause and women with Intellectual Disability, Glasgow
  • Invited speaker: Glasgow Palliative Care conference for people with learning disability: Glasgow, Scotland Bereavement issues in pre-registered staff implications for people with learning disabilities.
  • Invited speaker: Willis, D.S. Palliative Care conference, Cumbernauld. Supporting people with intellectual disabilities through investigations and treatment.
  • Invited Speaker: Welsh Marie Curie learning disability conference: title cancer and learning disability
  • Invited Speaker: RCN Career Conference: Glasgow SSEC: Choosing a speciality (Willis, D.S., O’Neal, A. and Selfridge, E.).
  • Presenter and reviewer: IASSID (International Association for the Scientific Study of Intellectual Disabilities) European conference Vienna: Explaining health problems to people with learning disabilities: views from family and paid-carers and Introducin
  • Presenter: 14th IASSID (International Association for the Scientific Study of Intellectual Disabilities) World Congress on Intellectual Disability, Halifax, Canada, women with intellectual disabilities views on breast cancer screening and what facilitates
  • Presenter: 6th Learning and Teaching Conference: University of Glasgow, Teaching equality, diversity and health inequalities... with help from imaginary friends!
  • Presenter: Nurse Education Today Conference, Cambridge. Embedding understanding of mental health and learning disability into the pre-registration nursing curriculum. Willis, D.S., Rice, A-M, & Moriarty, D.
  • Presenter: Nurse Education Today Conference, Cambridge. Health inequalities - engaging the learner imagination. Willis, D.S., Stevenson, T. & Cantrell, J.
  • Presenter: NHS Lothian Research Day, Edinburgh Royal Infirmary. Poster: Exploring breast screening with women with intellectual disabilities, Edinburgh
  • Presenter: 13th IASSID World Congress on Intellectual Disability. Oral presentation. Exploring the menopause with women with intellectual disabilities and their carers, Cape Town, 2008.
  • Presenter: 13th IASSID World Congress on Intellectual Disability. Oral presentation. Talking to women with intellectual disabilities about participating in breast cancer screening, Cape Town.
  • Presenter: . Menopausal issues in women with intellectual disabilities.
  • Presenter: RCN Breast Care Nursing Society Annual Conference. Poster: Exploring breast screening participation with women with intellectual disabilities, London
  • Presenter: Women’s and Children’s group, NHS Fife: The menopause, women with learning disabilities and their carers. May 2011.
  • Scottish Consortium of Learning Disability Nursing Network Conference, Oral presentation: The menopause and women intellectual disabilities..
  • Seattle Club. Oral presentation: Oral presentation: Relating the experience of the menopause – women with learning disabilities and their carers, Cardiff,
  • Building momentum Conference

 

Non-executive Directorship

  • Chair of Family Advice and Information Resource

 

Public/Community Engagement

  • Life death and lilies
  • Sharing ideas in bereavement and end of life care workshop. Feeding back about bereavement in professionals who support people with learning disabilities.
  • Bereavement workshop
  • ‘To absent Friends’
  • Mental Health and Stigma: understanding what practitioners need to engage with people with mental health problems

 

Reviewing

  • Reviewer for grants
  • Reviewer for Royal College of Nursing International Research Conference
  • Reviewer IASSID congress
  • Reviewer for British Journal of Learning Disabilities
  • Reviewer for Journal of Psychiatric and Mental Health Nursing

 

Seminar/talk

  • Research seminar series, Oral presentation: The menopause and women with learning disabilities. Edinburgh,
  • Research seminar series, Napier University. Oral presentation: Video analysis and intellectual disabilities
  • Organiser and chair, Moving Forward in Cancer Care
  • Organiser, Post-graduate Seminar group

 

Visiting Positions

  • Oman

 

Date


43 results

Qualitative exploration of the barriers to, and facilitators of, screening children for autism spectrum disorder in Oman

Journal Article
Al Maskari, T., Melville, C., Al Farsi, Y., Wahid, R., & Willis, D. (in press)
Qualitative exploration of the barriers to, and facilitators of, screening children for autism spectrum disorder in Oman. Early Child Development and Care, 1-16. https://doi.org/10.1080/03004430.2018.1550084
Few studies explored the challenges associated with screening of autism spectrum disorder (ASD) in Arab and Middle Eastern countries. This study aims to explore the facilitato...

Colorectal Cancer in People with Intellectual Disabilities

Journal Article
Willis, D., Samalin, E., & Satgé, D. (2018)
Colorectal Cancer in People with Intellectual Disabilities. Oncology, 95(6), 323-336. https://doi.org/10.1159/000492077
People with intellectual disabilities (PWIDs) are now living longer; thus, the incidence of cancer within this population is increasing. Available data indicate an excess of d...

Systematic review: cultural adaptation and feasibility of screening for autism in non-English speaking countries

Journal Article
Al Maskari, T. S., Melville, C. A., & Willis, D. S. (2018)
Systematic review: cultural adaptation and feasibility of screening for autism in non-English speaking countries. International Journal of Mental Health Systems, 12(1), https://doi.org/10.1186/s13033-018-0200-8
Aim: To explore the feasibility of screening for Autism spectrum disorder in Non-English-Speaking Countries, the cultural influences and the nurses' role in the screening proc...

Widening Access; Developing an eLearning Resource for Health and Social Care Professionals Caring for Children and Young People with Cancer

Journal Article
McInally, W., Pouso Lista, M. J., McLaren, N., & Willis, D. S. (2017)
Widening Access; Developing an eLearning Resource for Health and Social Care Professionals Caring for Children and Young People with Cancer. Journal of Cancer Education, https://doi.org/10.1007/s13187-017-1284-6
Cancer is a key priority worldwide, and caring for children and young people with cancer requires a range of specific knowledge, skills and experience in order to deliver the ...

Emotion Recognition in Children With Down Syndrome: Influence of Emotion Label and Expression Intensity

Journal Article
Cebula, K. R., Wishart, J. G., Willis, D. S., & Pitcairn, T. K. (2017)
Emotion Recognition in Children With Down Syndrome: Influence of Emotion Label and Expression Intensity. American Journal on Intellectual and Developmental Disabilities, 122(2), 138-155. https://doi.org/10.1352/1944-7558-122.2.138
Some children with Down syndrome may experience difficulties in recognising facial emotions, particularly fear, but it is not clear why, nor how such skills can best be facili...

Impact of policy for Children and Young People with Cancer

Journal Article
McInally, W., & Willis, D. S. (2017)
Impact of policy for Children and Young People with Cancer. Comprehensive Child and Adolescent Nursing, 40(2), 68-70. https://doi.org/10.1080/24694193.2017.1305250
No abstract available.

An integrative review of factors influencing the use of antibiotic de-escalation in hospital setting

Presentation / Conference
Wojcik, G., Kydonaki, C., Willis, D. & Williams, B. (2017, March)
An integrative review of factors influencing the use of antibiotic de-escalation in hospital setting. Poster presented at Edinburgh Antimicrobial Resistance Research Symposium, Edinburgh
No abstract available.

Examining Dementia Caregivers’ Experiences

Journal Article
Joy, J., Whitelaw, T., Oldfather, I., & Willis, D. (2016)
Examining Dementia Caregivers’ Experiences. International Journal of Aging and Society, 7(2), 59-72. https://doi.org/10.18848/2160-1909/CGP/v07i02/59-72
There are 46.8 million people living with dementia in the world and this number is expected to rise (The World Alzheimer Report 2015). The burden on caregivers can be enormou...

Young men with intellectual disabilities’ constructions of the human papillomavirus and vaccine

Journal Article
Carnegie, E., Whittaker, A., Gray Brunton, C., Harding, S., Hilton, S., Hogg, R., …Willis, D. (2016)
Young men with intellectual disabilities’ constructions of the human papillomavirus and vaccine. European Journal of Public Health, 26(suppl_1), ckw169.050. doi:10.1093/eurpub/ckw169.050
Scotland is one European country offering a national schoolbased HPV vaccination programme to at least one age-cohort of females, however it does not include young men. A subs...

Herpes simplex virus: ‘to disclose or not to disclose.’ An exploration of the multi-disciplinary team’s role in advising patients about disclosure when diagnosed with genital herpes simplex virus

Journal Article
Caulfield, P., & Willis, D. (2017)
Herpes simplex virus: ‘to disclose or not to disclose.’ An exploration of the multi-disciplinary team’s role in advising patients about disclosure when diagnosed with genital herpes simplex virus. International Journal of STD and AIDS, 28(8), 750-755. https://doi.org/10.1177/0956462416665730
The first UK prosecution for genital herpes simplex virus (HSV) transmission in 2011 attracted strong criticism from medical experts. To address the dearth of research on the ...

Pre-Napier Funded Projects

  • HPV vaccination in young people from ethnic minority backgrounds and people with intellectual disabilities.
  • Two day workshop on learning disability
  • Supporting pre-registered nurses in bereavement care.
  • Preparing for the future, fearing the worst, support for carers and people with learning disabilities in bereavement
  • Cancer screening in learning disability
  • Development workshop on cancer and people with learning disabilities.
  • Exploring the menopause in women Down's syndrome and non specific learning disability
  • Peer collaboration in children with and without intellectual disabilities.
  • Menopause in women with learning disability

Current Post Grad projects

Previous Post Grad projects

Non-Napier PhD or MSc by Research supervisions

  • A mixed methods study exploring the barriers and facilitators of screening for autism spectrum disorder in Oman