Diane Willis

Diane Willis

Dr Diane Willis

Lecturer

Biography

I am a lecturer at Edinburgh Napier University and hold professional qualifications – as a registered nurse, as a psychologist and I was a counsellor. I have held a number of posts from Research Fellow, Practice Educator, Equality Officer to lecturer in other Universities, the NHS and non Governmental Organisations. I have a wide portfolio of work both academic, Government and Health and Social Care areas.

My primary research interest lies in the field of intellectual disability especially cancer care, bereavement, healthy ageing, women’s issues and health and social care inequalities. I also have interests in mental health, welfare reform, citizenship, bereavement (more widely), health and social care workforce and creativity in the curriculum.

I am an external examiner for Sheffield Hallam University, Chair for Family Advice and Information Resource (FAIR) and Board member of the Society of Cancer and Intellectual and Developmental Disabilities.

I sit on a number of groups including the Learning Disability East Managed Care Network, Excellence in Care Academic Advisory Group and Future Nurse steering group .

Themes

Esteem

Advisory panels and expert committees or witness

  • Voting in people with intellectual disabilities.
  • Athena Swan Charter working group at the University of Glasgow
  • University on the Council of Deans interest group for learning disability
  • Changingmindz
  • CARE AFTER DEATH EDITION 2

 

Conference Activity

  • Palliative care
  • Intellectual disability services from the Swedish and Scottish perspective
  • Building momentum
  • Support and link person for students, Non-learning Disability Student Conference, with NES
  • Facilitator, conference on People with cancer and an intellectual disability: an international issue with local significance, Edinburgh, February 2008.
  • Member of the organising committee at University of Glasgow for RCN International Research Conference
  • Organiser: bereavement seminar Managed Clinical Networks
  • Organiser and chair, two-day workshop on Research in Learning Disability, University of Glasgow and Glasgow Caledonian University, .
  • Organiser of Symposium on strengthening commitment to ensure people with intellectual disabilities enjoy a good life. Presented with colleagues from Glasgow Caledonian University and NHS Greater Glasgow and Clyde (McGlade, I. and Gallagher, M.), Prince an
  • Organiser and chair,:”To absent friends”, Bereavement Café
  • Chair of session, ONCODEF conference France February 2014.

 

Conference/Workshop

  • Presenter and member of organising committee for the 2008 Postgraduate Conference, Edinburgh Napier University. Poster: Breast screening decision making in women with learning disabilities,
  • Presenter and organiser: Development workshop. Cancer and people with learning disabilities
  • Postgraduate Conference, Edinburgh Napier University. Oral presentation: An ethnographic study of decision making in relation to breast cancer screening for women with learning disabilities,
  • Presenter: Postgraduate Conference. Oral presentation: Breast screening and women with learning disabilities
  • Member of organising committee for the 2008 Postgraduate Conference

 

External Examining/Validations

  • External Examiner for University of Lincoln BN Adult

 

Fellowships and Awards

  • Shortlisted for the best paper in the RCN conference 2014 on bereavement and student nurses
  • NMAHP Award – Willis, D.S., & Mack, S. £300 (3rd prize), for a proposal for a Cancer Screening Handbook: A Guide for Professionals, Carers & Service Users

 

Invited Speaker

  • Managing the menopause in women with intellectual disabilities.
  • Invited speaker: Glasgow Palliative Care conference for people with learning disability: Glasgow, Scotland Bereavement issues in pre-registered staff implications for people with learning disabilities.
  • Invited speaker: Willis, D.S. Palliative Care conference, Cumbernauld. Supporting people with intellectual disabilities through investigations and treatment.
  • Invited Speaker: Welsh Marie Curie learning disability conference: title cancer and learning disability
  • Special Interest Group Learning Disability. Oral presentation: The menopause and women with Intellectual Disability, Glasgow
  • Presenter and reviewer: IASSID (International Association for the Scientific Study of Intellectual Disabilities) European conference Vienna: Explaining health problems to people with learning disabilities: views from family and paid-carers and Introducin
  • Presenter: 14th IASSID (International Association for the Scientific Study of Intellectual Disabilities) World Congress on Intellectual Disability, Halifax, Canada, women with intellectual disabilities views on breast cancer screening and what facilitates
  • Presenter: 6th Learning and Teaching Conference: University of Glasgow, Teaching equality, diversity and health inequalities... with help from imaginary friends!
  • Presenter: Nurse Education Today Conference, Cambridge. Embedding understanding of mental health and learning disability into the pre-registration nursing curriculum. Willis, D.S., Rice, A-M, & Moriarty, D.
  • Presenter: Nurse Education Today Conference, Cambridge. Health inequalities - engaging the learner imagination. Willis, D.S., Stevenson, T. & Cantrell, J.
  • Presenter: NHS Lothian Research Day, Edinburgh Royal Infirmary. Poster: Exploring breast screening with women with intellectual disabilities, Edinburgh
  • Presenter: 13th IASSID World Congress on Intellectual Disability. Oral presentation. Exploring the menopause with women with intellectual disabilities and their carers, Cape Town, 2008.
  • Presenter: 13th IASSID World Congress on Intellectual Disability. Oral presentation. Talking to women with intellectual disabilities about participating in breast cancer screening, Cape Town.
  • Presenter: . Menopausal issues in women with intellectual disabilities.
  • Presenter: RCN Breast Care Nursing Society Annual Conference. Poster: Exploring breast screening participation with women with intellectual disabilities, London
  • Presenter: Women’s and Children’s group, NHS Fife: The menopause, women with learning disabilities and their carers. May 2011.
  • Scottish Consortium of Learning Disability Nursing Network Conference, Oral presentation: The menopause and women intellectual disabilities..
  • Seattle Club. Oral presentation: Oral presentation: Relating the experience of the menopause – women with learning disabilities and their carers, Cardiff,
  • Invited Speaker: RCN Career Conference: Glasgow SSEC: Choosing a speciality (Willis, D.S., O’Neal, A. and Selfridge, E.).
  • Building momentum Conference

 

Non-executive Directorship

  • Chair of Family Advice and Information Resource

 

Public/Community Engagement

  • Life death and lilies
  • Sharing ideas in bereavement and end of life care workshop. Feeding back about bereavement in professionals who support people with learning disabilities.
  • Bereavement workshop
  • ‘To absent Friends’
  • Mental Health and Stigma: understanding what practitioners need to engage with people with mental health problems

 

Reviewing

  • Reviewer for grants
  • Reviewer for Royal College of Nursing International Research Conference
  • Reviewer IASSID congress
  • Reviewer for British Journal of Learning Disabilities
  • Reviewer for Journal of Psychiatric and Mental Health Nursing

 

Seminar/talk

  • Research seminar series, Oral presentation: The menopause and women with learning disabilities. Edinburgh,
  • Research seminar series, Napier University. Oral presentation: Video analysis and intellectual disabilities
  • Organiser and chair, Moving Forward in Cancer Care
  • Organiser, Post-graduate Seminar group

 

Visiting Positions

  • Oman

 

Date


44 results

Cervical cancer surveillance.

Book
Sullivan, S. G., Satge, D., & Willis, D. (2009)
Cervical cancer surveillance. In D. Satgé, & J. Merrick (Eds.), Cancer in Children and Adults with Intellectual Disabilities: Current Research Aspects, 113-122. Nova Science Publishers

Breast cancer surveillance.

Book
Willis, D., Satge, D., & Sullivan, S. G. (2009)
Breast cancer surveillance. In D. Satge, & J. Merrick (Eds.), Cancer in Children and Adults with Intellectual Disabilities: Current Research Aspects, 103-112. Nova Science Publishers

A decade on, what have we learnt about supporting women with intellectual disabilities through the menopause?

Journal Article
Willis, D. (2008)
A decade on, what have we learnt about supporting women with intellectual disabilities through the menopause?. Journal of Intellectual Disabilities, 12, 9-23
Carr and Hollins highlighted the paucity of research on the menopause in women with intellectual disabilities and, 10 years on, this area still remains poorly researched. Work...

Breast cancer screening in women with learning disabilities: current knowledge and considerations

Journal Article
Willis, D., Kennedy, C., & Kilbride, L. (2008)
Breast cancer screening in women with learning disabilities: current knowledge and considerations. British Journal of Learning Disabilities, 36, 171-184. https://doi.org/10.1111/j.1468-3156.2008.00520.x
This paper looks at what has been written about breast screening in women with learning disabilities. Breast screening checks for lumps in your breast that might be cancer. Br...

Breast cancer surveillance in women with intellectual disabilities

Journal Article
Willis, D., Kennedy, C., Kilbride, L., Satge, D., & Sullivan, S. G. (2008)
Breast cancer surveillance in women with intellectual disabilities. International journal on disability and human development, 7, 405-412. https://doi.org/10.1515/IJDHD.2008.7.4.405
Breast cancer is the most frequent malignant neoplasm observed among women. For the subgroup of women with learning/intellectual disability, it is unclear whether their risk f...

Same as you: health issues in women with learning disabilities after the menopause

Journal Article
Willis, D. (2007)
Same as you: health issues in women with learning disabilities after the menopause. Learning Disability Practice, 10, 16-22. https://doi.org/10.7748/ldp2007.11.10.9.16.c6257
Rising life expectancy means that more people with learning disabilities are living into old age (Bittles et al 2002, Wilkinson and Janicki 2005). Although this is very welcom...

Collaborative learning: comparison of outcomes for typically developing children and children with intellectual disabilities.

Journal Article
Wishart, J. G., Willis, D., Cebula, K. R. & Pitcairn, T. K. (2007)
Collaborative learning: comparison of outcomes for typically developing children and children with intellectual disabilities. American journal of mental retardation : AJMR. 112, 361-374. doi:10.1352/0895-8017(2007)112[0361:CLCOOF]2.0.CO;2). ISSN 0895-8017
Collaborative learning is widely used in mainstream education but rarely utilized with children who have intellectual disabilities, possibly on the assumption that the metacog...

Understanding of facial expressions of emotion by children with intellectual disabilities of differing aetiology.

Journal Article
Wishart, J. G., Cebula, K. R., Willis, D. & Pitcairn, T. K. (2007)
Understanding of facial expressions of emotion by children with intellectual disabilities of differing aetiology. Journal of Intellectual Disability Research. 51, 551–563. doi:10.1111/j.1365-2788.2006.00947.x. ISSN 0964-2633
Background Interpreting emotional expressions is a socio-cognitive skill central to interpersonal interaction. Poor emotion recognition has been reported in autism but is les...

The REY figure copy as a screening instrument fro perceptual deficits after stroke.

Journal Article
Lincoln, N. B., Drummond, A. E. R., Edmans, J. A., Yeo, G. T. & Willis, D. (2006)
The REY figure copy as a screening instrument fro perceptual deficits after stroke. British Journal of Occupational Therapy. 61, 33-35. doi:10.1177/030802269806100108. ISSN 0308-0226
The aim of the study was to investigate the use of the Rey figure for screening patients for perceptual impairment following stroke. Stroke patients in a trial of a stroke uni...

Emotion recognition by children with Down syndrome: investigation of specific impairments and error patterns.

Journal Article
Williams, K. R., NaWishart, J. G., Pitcairn, T. K. & Willis, D. (2005)
Emotion recognition by children with Down syndrome: investigation of specific impairments and error patterns. American journal of mental retardation : AJMR. 110, 387-392. ISSN 0895-8017
The ability of children with Down syndrome to recognize expressions of emotion was compared to performance in typically developing and nonspecific intellectual disability grou...

Pre-Napier Funded Projects

  • HPV vaccination in young people from ethnic minority backgrounds and people with intellectual disabilities.
  • Two day workshop on learning disability
  • Supporting pre-registered nurses in bereavement care.
  • Preparing for the future, fearing the worst, support for carers and people with learning disabilities in bereavement
  • Cancer screening in learning disability
  • Development workshop on cancer and people with learning disabilities.
  • Exploring the menopause in women Down's syndrome and non specific learning disability
  • Peer collaboration in children with and without intellectual disabilities.
  • Menopause in women with learning disability

Current Post Grad projects

Previous Post Grad projects

Non-Napier PhD or MSc by Research supervisions

  • A mixed methods study exploring the barriers and facilitators of screening for autism spectrum disorder in Oman