Edinburgh Napier University

  Background: Cardiovascular disease (CVD) is a leading cause of global mortality, necessitating extensive research efforts. In Scotland, the NHS Research Scotland (NRS) Cardiovascular Network plays a pivotal role in coordinating cardiovascular research. Patient and public involvement (PPI) is crucial for shaping meaningful research strategies, yet barriers to such engagement persist.

Methods: We organised a hybrid PPI event, bringing together patients, researchers, and stakeholders. Interactive sessions explored barriers and enablers of PPI. Qualitative and quantitative data were collected, focusing on communication, commitment, and value as key themes.

Results: Participants highlighted communication challenges, emphasizing the need for clear, accessible information about research involvement. Commitment barriers included costs, travel, and time constraints. Feeling valued as research participants was essential, emphasising recognition of diverse experiences. Running the event as hybrid facilitated broader participation, employing professional notetakers, BSL interpreters, and moderators.

Conclusion: Holding this event emphasised the importance of PPI in cardiovascular research, outlining communication, commitment, and value as key facets. Hybrid events enhance inclusivity but demand careful planning. Meaningful PPI, as exemplified in this study, informs and enhances research quality, underscoring the need for continued investment in patient involvement initiatives.